Wow!! Sorry for being so slow to post this week! I think I have exceeded my usual self imposed time limit. It’s been busy and I think I’ve had some writers block or something…

It has been a good week. Kids got their flu shots last week and that was fairly uneventful. Took them for some Chick-fil-a dinner afterwards. We get home and Princess is playing with her kid’s meal toy at the dining room table. It is a bracelet thingy with ABC cards that she can practice writing her letters on. She appeared to have it stuck on her arm. So I pull it off set it on the table and go about what I was doing.

She stops. I mean if she had glasses, she would have been looking over the top of them at the end of her nose. “Daddy, you are so rude!”

She then proceeds to put her toy back on her wrist. Where did my almost three year old go? And where did this going on 13 year old come from? This is going to get better right?

I’m guessing no, best buckle up.

Monkey had a cold/recovering from flu shot early this week but slept it off with no seizures today. So that is good news. Morgan and I went to Greenville, SC for  the medical marijuana hearing for which my wife is on the committee reporting back to the state senate.

A bill was passed last session to legalize the possession and use of cannabis oil for intractable epilepsy. The oil is a derivative from the marijuana plant. It has little to no side effects and is indefinitely adjustable for each patient. However, they didn’t give us any way to get the stuff legally. That’s what this is about.

Very interesting day, as was the last meeting in Charleston. Lots of people came to testify and tell their stories for their children and then of course you have those people who have less than medicinal purposes showing up to make their case for something else. Like I said, interesting. But things seem to be headed in a good direction.

Consider this my public service announcement for the week. Don’t forget about the awesome child of your friend, family member, etc when you talk to them. We love to talk about our kids. Especially when it’s not about how many seizures they’ve had today or their current medical regiment. We as parents of special needs children have to fight our own laziness everyday to include our children in the everyday activities of our family. Not to be harsh, but when you find yourself in the company of special needs parents, try to remember this. Especially those of us who have fully functioning children too.

I’m probably not making much sense, but my point is don’t leave our kids out. You don’t mean to, I know. But even the small things can get us going. You’re excited about an experience you’ve had you think, man I bet (insert functioning child’s name) would love to do that one day. Guess what, (insert special needs child’s name) probably would too. We as their parents will work on accommodating the how, but we love it when you think about our kids participating in life instead of watching the rest of us enjoy it without them.