It’s official. We are those people. My grandmother invited us and my cousins to her house for a Christmas dinner tonight. Our week was busy before it began with church activities and plans with our kids to do various holiday goodness. I meant to call her on Monday to tell her we wouldn’t make it.

We remembered to send a gift. I (me) did not remember to call and tell her we wouldn’t make it. I didn’t even remember the dinner was happening until I got a couple of texts from family making sure we were alright since they we were there, and we were not.

Our lives are different than most. Our priorities are not guided by our dreams or desires on a daily or weekly basis. They are dictated by necessity and survival. The choices we make often alienate us from others or to the inattentive eye seem like we just don’t care. These could not be less true. We do care and would love to live just like everyone else. But we can’t.

If you’re now thinking that this sounds like I am just trying to justify my forgetfulness, your are only partially correct. The other part, the bigger part is to try to help you understand or if you’re rowing the same boat we are make sure you know you are not alone.

We will make decisions that may be perplexing. We will want to be at dinners and visit with friends. But after one such lovely afternoon with good friends, you should probably know just what I told them, “We’ll do this again soon, and by that  I mean we’ll want to but we’ll see you in six months to a year”.

Our schedule is not our own. We live by lunar cycles and seizure cycles. We do what we are are able to do until we have no energy left to do at all. And we do it all for our children.

On a lighter note, Merry Christmas! Sorry for the seriousness and no adorable pictures of the kids. I’ll get some lovely Christmas ones up soon with some stories from what I’m sure will be an eventful Christmas 🙂