Some like to play sports. Others enjoy some quiet reading. Perhaps some TV or video games. Well, you’re about to find out what the really cool kids do for fun.

We have spent the last day and half in Charleston, SC. Yes, The Holy City. We love it there, have wonderful friends that call it home. No, no yachting, fishing, promenading , shopping in the market or the other sundry of incredible things you can do in one of the oldest places on the East Coast and certainly the most cultured 😉 There was a time in our lives when we spent a good bit on time on Rutledge Ave. Well, we still do, just not quite the same neighborhood.

Monkey has been hooked up to an EEG (http://www.mayoclinic.org/tests-procedures/eeg/basics/definition/prc-20014093) for the better part of the last two days at MUSC (Medical University of South Carolina). This my friends cannot be topped by any other mere Charleston experience (if you do not hear the sarcasm falling off my fingers, you do now). This particular wonder measures his brain activity, can detect where seizures originate, and determine if there is any other concerning brain activity that occurs between seizures.

A quick rundown of what this looked like. Monkey has seizures in his sleep regularly, this is nothing out of our ordinary. We hear him, take a peak on the video monitor, make sure he’s good and everyone goes back to sleep. While on vacation at the hospital they gave us a button. He has a seizure, we push the button it marks the time on the EEG report so they know where to look. Ingenious, right? Well, if that were the whole story, sure. Seizure, push button… overhead light comes on, alarm sounds at nurses station and in rushes every nurse and CNA on our hall. Monkey had two seizures in the middle of the night and one at 7am. Now this is how we do Chuck Town. I think I liked debutante balls and cocktail parties better.

Disclaimer here is that these lovely people do their jobs very well. Some parents and situations require them to show a little panic. We are not those people. Talk about getting your heart rate up. I think we needed to be hooked up to the pulse/ox machine more than Monkey did. They did read our reaction to this fairly well and calmed it down a bit. Good news is it’s over. Monkey cooperated and had seven seizures while hooked up and did so within 24hrs. Which is great. Some kids get to sit around and wait for days to have a seizure their docs get to record. Better news is we’re home. Initial results looked good, nothing unexpected going on.

Next Monday’s adventure is a swallow study. Cancel your dinner plans and BBQ’s folks, this is how the cool kids do it.